Welcome to the North American Mitochondrial Disease Consortium
Join Our Research Studies
Mitochondrial diseases present a challenge because they are probably the most diverse human disorders at every level: clinical, biochemical, and genetic. Although severity varies, by and large these are progressive and often crippling disorders. The NAMDC, working closely with the United Mitochondrial Foundation (UMDF), is working to address these difficult issues.
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Join the RDCRN for Rare Disease Day at NIH on February 27, 2026
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Friday, February 27, 2026, from 9 am to 5 pm EST.
NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.
Learn More About Mitochondrial Diseases
Access educational materials, frequently asked questions, lectures, and more.