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Patient Advocacy Groups

Patient advocacy organizations specializing in mitochondrial diseases are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

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United Mitochondrial Disease Foundation

Promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders while providing support to those affected.

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MitoAction

Improves quality of life for people affected by mitochondrial disease through education, outreach, advocacy, and clinical research initiatives.

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Muscular Dystrophy Association

Supports efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases.